Tuesday, April 4, 2017

The rest of February & March 2017

It's been a somewhat uneventful (in my opinion anyway!) few weeks since I last posted. There aren't many times in the past 5 years that I can say that. So...I'm soaking it all in. After I was sick in February, the month ended with some really nice moments. Benjamin finished up his basketball season, I took a trip to Baltimore for a bowling tournament, and finished out the month in Lake Placid for Ben's hockey tournament. We also snuck away to Florida in between Baltimore & Lake Placid. Lake Placid was one of the most memorable trips ever....getting to see where the Miracle on Ice happened and a power outage in the middle of a game which ended up lasting almost 17 hours. We'll never forget it!

The best part of all of that was Benjamin turned a corner with his sleeping! During the month of February, he slept through the night every night except for 4 nights...this is incredible! These habits went through March as well; he only missed 4 nights that month too. I can only hope that the previous 9 months or so are behind him and he continues to make strides. It helps his overall attitude, appetite, etc throughout the day. Now, if he can only lend a little to his brother. I was hoping that Nate started to turn the corner too after sleeping through the night 18/28 nights in February, but March was a true struggle. He only slept through 10 nights and was usually up by 5:15 on the nights he did make it through. The positives are that he does fall back asleep somewhat quickly after I walk him back, but usually at 45 minute intervals. People always ask how I do it; I always look at how far he's come and look at the progress he's made. I know he'll get there; it's just going to take him a little longer to get there. That's not to say I'm not exhausted most mornings, but I know it could always be worse. :)

March was such a low-key month...no sports for Ben, so not much running around which was really nice. It was good to focus on the little things....a concert for Ben at school, the nights where they read to each other, Ben writing cute little notes to Nate while he has free time at school, and experiencing a March blizzard which is always fun (eyeroll).

Now that we're into April, the hustle and bustle of spring sports will begin, which I'm looking forward to! Benjamin will play baseball and Nathan is going to try soccer. He's hesitated to try a sport in the past and I can only hope he enjoys it and has fun. He also began another session of yoga last week, which he loves. Nathan's tonsillotomy is also scheduled for April 20th in Boston and it honestly can't come soon enough. I pray that it helps the lingering cough that he's had for a year now and most importantly, his sleep!!! 

April is also the anniversary month of when Nate was diagnosed. I've already had some flashback freak-out moments knowing that the day is approaching. For those of you that weren't around back then, it's April 12. I go to bed every night so incredibly thankful that his long-term prognosis is good, but knowing that there are others we know with his diagnosis currently going through treatment, I also know we could be a day away from our life turning upside down again. Head and tumor-wise, he is doing so beautifully right now. I choose to concentrate on that and all of the silly things that make up who he is. Unfortunately, my brain sometimes chooses to go "there." I do my best to keep those feelings at bay, but also allow myself to have them. I am only human, right?
















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